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You are here: The Library Nutrition and Metabolism Disorders Mucopolysaccharidosis III

Mucopolysaccharidosis III

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Ben's Dream

www.bensdream.org

Information about a foundation dedicated to increasing awareness of Sanfilippo Syndrome and raising funds to support research aimed at finding a cure. Includes a newsletter.

Bennett Children's Foundation

www.claritystudio.com/helpachild/

Founded by parents of three young children who suffer from Sanfilippo Syndrome, a degenerative genetic disorder that is usually fatal before the teens. Raising awareness of the condition and enlisting financial support.

Children's Medical Research Foundation

www.curekirby.org

Funds medical research to find a cure for Sanfilippo Syndrome and other neuro-genetic disorders. News and links to summaries of research that has been supported by the foundation.

Julia's Hope--The Sanfilippo Syndrome Medical Research ...

www.juliashope.org

A non-profit organization incorporated under the laws of the State of Nebraska to promote research toward a cure for Sanfilippo Syndrome and related disorders in children. Events, grants, and Julia's story.

Special Child: Disorder Zone Archives - Sanfilippo Synd...

www.specialchild.com/archives/dz-034.html

Describes the disorder for the benefit of parents, lists characteristics of children with the disorder, and tells what to expect.

The Sanfilippo Children's Research Foundation

www.alifeforelisa.org

Canadian based charitable group founded by the parents of Elisa Linton.

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