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Congenital Anomalies

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Association of Birth Defect Children, Inc.

www.birthdefects.org

Charitable organization started by parents in 1982.

Children's Craniofacial Association

www.ccakids.com

A national, nonprofit organization, headquartered in Dallas, Texas, dedicated to improving the quality of life for people with facial differences and their families.

Congenital Heart Anomalies, Support, Education, and Res...

www.csun.edu/~hcmth011/chaser/chaser-news.html

CHASER News offers information on many heart defects, parent matching, and fact sheets.

Congenital Heart Defects Awareness Day

www.chdinfo.com/chdaware/

Information to promote awareness about heart birth defects affecting infants and children. The special day is observed on February 14th.

Cystic Hygroma

www.cafamily.org.uk/Direct/c95.html

An article explaining this disorder and a support group for sharing.

Cystic Hygroma and Fetal Hydrops

www.bereavedparents.com/medical/cystichygroma.php

From bereaved parents. Site has an explanation of cystic hygroma and more resources.

Imperfect Hearts

www.imperfecthearts.net

Includes interactive forums, Jara's story, and parent support.

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